Social support and the functional dimension in care for people with cerebral palsy
DOI:
https://doi.org/10.47456/rbps.v22i3.28800Keywords:
Caregivers, Cerebral palsy, Family, Social support, Social networkingAbstract
Introduction: Support networks can reflect on self-confidence, life satisfaction and ability to cope with adverse situations, positively affecting the health of caregivers of people with cerebral palsy. Objective: To identify the existence of support networks that integrate the caregiver and the person with cerebral palsy. Methods: This is a research with qualitative approach conducted through semi-structured interview. Ten caregivers of children with Cerebral Palsy, aged between 8 and 30 years, participated in the research, assisted in the Extension Project Welcoming Special Smiles, Faculty of Dentistry, Federal University of Pelotas. The information was collected from January to June 2017. The research was approved by the Research Ethics Committee under opinion number 1.994.742. Data interpretation was carried out through thematic analysis. Results: Three themes were elaborated: Solitude spectrum; Secondary tutors and caregivers, a privilege for the few; Support sources, the networks that promote belonging. The results show that the caregivers identified the existence of support networks, consisting of professionals from specialized assistence institutions, the family, paid caregivers and religious institutions. Conclusion: Social support proved to be important in coping with the disease and in family restructuring and its lack generated, in the caregivers, feeling of hopelessness, frustration, tiredness and weakness in relation to their efforts to overcome or live with this condition.
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