Links and tensions between disability and mental health
DOI:
https://doi.org/10.47456/argumentum.v13i3.44113Keywords:
Persons with Disabilities, Mental Health, Brazilian Psychiatric ReformAbstract
There is a gap between policies and struggles related to the field of Mental Health and that of Persons with Disabilities. This article discusses the connections and tensions between these fields using Mental Health Studies and Disability Studies sources. Based on eleven interviews with Brazilian activists, researchers, and managers, we discuss the translation and choice of terms employed in Brazil and the legal frameworks surrounding these policies. In the Global South, there is little academic output, with an emerging movement in Africa, while in India the feminist struggle is allied to confronting the patriarchal oppressions reproduced by Psychiatry. There is synergy between the struggles and convergence around access to the right to income linked to disability, but there are divergences in the choice of the terms with which these collectives designate themselves.
Downloads
References
Abreu, T. P. C. D.; Vilardo, M. A. T.; Ferreira, A. P. Acesso das pessoas com deficiência mental aos direitos e garantias previstos na Lei Brasileira de Inclusão por meio do Sistema Único de Assistência Social. Saúde em Debate, Rio de Janeiro, v. 43, n. spe4, p. 190–206, 2019.
Alves, T. Reforma psiquiátrica e questões de classe, raça/etnia e gênero: particularidades do contexto brasileiro. SciELO Preprints, 2022. DOI: 10.1590/SciELOPreprints.4673. Disponível em: https://preprints.scielo.org/index.php/scielo/preprint/view/4673. Acesso em: 27 jan. 2021.
Amarante, P. D. de C. Loucos pela vida: a trajetória da Reforma Psiquiátrica no Brasil. Rio de Janeiro. Fiocruz, 1995.
Andrade, A. P. M. Agenciamentos sociais e ações do Estado: Parada do Orgulho Louco no Brasil. Anuário Antropológico, Brasília (DF), v. 45, n. 2, p. 126–143, 2020.
Beresford, P.; Russo, J. Supporting the sustainability of Mad Studies and preventing its co-option. Disability & Society, London, p. 1–5, 17. fev. 2016.
Brasil. Ministério da Saúde. Comissão Relatora da IV Conferência Nacional de Saúde Mental – Intersetorial. Relatório final da IV Conferência Nacional de Saúde Mental: Intersetorial. Brasília (DF), 2011. Acesso em: 29 jan. 2021. Disponível em: http://portal.saude.gov.br/portal/arquivos/pdf/2011_2_1relatorio_IV.pdf. Acesso em: 27 jan. 2021.
Carniel, F.; Mello, A. G. de. Quem escreve pela deficiência no pensamento social brasileiro? Contemporânea-Revista de Sociologia da UFSCar, São Carlos, v. 11, n. 2, 2021.
Cosgrove, L.; Mills, C.; Karter, J. M.; Mehta, A.; Kalathil, J. A critical review of the Lancet Commission on global mental health and sustainable development: Time for a paradigm change. Critical Public Health, Calgary, v. 30, n. 5, p. 624–631, 2020.
Davar, B. V. From mental illness to disability: Choices for women users/survivors of psychiatry in self and identity constructions. Indian journal of gender studies, [S.l.], v. 15, n. 2, p. 261–290, 2008.
Davar, B. V. Gender, Depression and Emotion: Arguing for a De-colonized Psychology. In: Anand, M. (Org.). Gender and Mental Health. Singapore: Springer Singapore, 2020. p. 19–32.
Gaudenzi, P., Ortega, F. Problematizando o conceito de deficiência a partir das noções de autonomia e normalidade. Ciência & Saúde Coletiva, Rio de Janeiro, v. 21, n. 10, p. 3061-3070, 2016. Disponible en: https://www.redalyc.org/articulo.oa?id=63047756009. Acesso em: 12 jan. 2021.
Gesser, M.; Block, P.; Mello, A. G. Estudos da deficiência: interseccionalidade, anticapacitismo e emancipação social. In: Gesser, M.; Block, P.; Mello, A. G. (Orgs.). Estudos da deficiência: anticapacitismo e emancipação social. Curitiba: CRV, 2020. p. 17-35.
Gesser, M.; Moraes, M. Ofensivas capacitistas e o medo de um planeta aleijado: desafios para o ativismo defiça. Athenea Digital, Revista de pensamiento e investigación social, Bracelona, v. 23, n. 2, p. e3310–e3310, 2023.
Kleintjes, S.; Lund, C.; Swartz, L. Barriers to the participation of people with psychosocial disability in mental health policy development in South Africa: a qualitative study of perspectives of policy makers, professionals, religious leaders and academics. BMC International Health and Human Rights, [S.l.], v. 13, n. 1, p. 17, 11 mar. 2013.
Lopes, P. Deficiência na cabeça: convite para um debate com diferença. Horizontes Antropológicos, Porto Alegre, v. 28, n. 64, p. 297–330, dez. 2022.
Mad In Brasil. Primeiro Encontro LatinoAmericano de Estudos Loucos. Notícias, 31 maio 2021. Disponível em: https://madinbrasil.org/2021/05/primeiro-encontro-latinoamericano-de-estudos-loucos/. Acesso em: 15 mar. 2024.
Mello, A. G. de. Deficiência, incapacidade e vulnerabilidade: do capacitismo ou a preeminência capacitista e biomédica do Comitê de Ética em Pesquisa da UFSC. Ciência & Saúde Coletiva, Rio de Janeiro, v. 21, n. 10, p. 3265–3276, out. 2016.
Moraes, M. PesquisarCOM: política ontológica e deficiência visual. In: Moraes M.; Kastrup, V. (org.). Exercícios de ver e não ver: arte e pesquisa com pessoas com deficiência visual. Rio de Janeiro: Nau, 2010. p. 26-51.
Morgan, H. Mad studies and disability studies. In: The Routledge international handbook of Mad studies. London: Routledge, 2021. p. 108–118.
Oliver, M. Understanding disability: From theory to practice. Londres: Bloomsbury Publishing, 2018.
Oliver, M. If I had a hammer: The social model in action. In: Swain, J.; French, S.; Barnes, C.; Thomas, C. Disabling barriers: enabling environments. 2. ed. London: Sage, 2004. v. 2, p. 7–12.
Passos, R. G. Mulheres negras, sofrimento e cuidado colonial. Revista Em Pauta: Teoria Social e Realidade Contemporânea, Rio de Janeiro, n. 45, v. 18, p. 116-129, 2020.
Puras, D. Report of the Special Rapporteur on the right of everyone to the enjoyment of the highest attainable standard of physical and mental health. Phil. LJ, [S.l.], v. 95, p. 274, 2022.
Quinn, G. The United Nations Convention on the Rights of Persons with Disabilities: towards a unified field theory of disability. Toward a new international politics of disability. Pune: Indian Law Society, G.V. Pandit Memorial Oration, 2009.
Russo, J.; Shulkes, D. What we talk about when we talk about disability: making sense of debates in the European user/survivor movement. In: Madness, distress and the politics of disablement. Bristol: Policy Press, 2015. p. 27–42.
Santos, A. S. D. Um roteiro virtual sobre ativismo biossocial e biodeserção no Movimento dos Consumidores/ Ex-pacientes/Sobreviventes da Psiquiatria. Interface - Comunicação, Saúde, Educação, Botucatu, v. 27, 2023.
Sassaki, R. Z. Conhecendo pessoas com deficiência psicossocial. [on-line]. In: Autismo: Conhecer e Agir. Rio de Janeiro: OABRJ, 13 abr. 2012. Disponível em: http://www. oabrj. org. br/arquivos/files/-Comissao/cartilha_autismo.pdf. Acesso em: 19 set. 2016.
Sassaki, R. K. Deficiência psicossocial: a nova categoria de deficiência. Fortaleza: Agenda, 2011a.
Sassaki, R. K. Incluindo pessoas com deficiência psicossocial. Revista Nacional de Reabilitação/Reação, n. 14, p. 14, 2011b.
Tedesco, S. H.; Sade, C.; Caliman, L. V. A entrevista na pesquisa cartográfica: a experiência do dizer. Fractal: Revista de Psicologia, Niterói, v. 25, n. 2, p. 299–322, 2013.
Thorneycroft, R. Crip Theory and Mad Studies: Intersections and Points of Departure. Canadian Journal of Disability Studies, v. 9, n. 1, p. 91–121, 2020.
Vinuto, J. A amostragem em bola de neve na pesquisa qualitativa: um debate em aberto. Temáticas, Campinas, v. 22, n. 44, 2014.
Published
How to Cite
Issue
Section
License
Copyright (c) 2024 Argumentum
This work is licensed under a Creative Commons Attribution 4.0 International License.
Copyright Transfer Agreement
As a condition for submission, the authors must agree with the Copyright Transfer Agreement, by checking the box after reading the clauses.
The author(s) (hereinafter "AUTHOR") hereby agrees to transfer, without any financial compensation, the property of copyrights regarding Argumentum, a journal of the Postgraduate Program in Social Politics (Programa de Pós-graduação em Política Social), Federal University of Espírito Santo (Universidade Federal do Espírito Santo) - Av. Fernando Ferrari, 514 - Goiabeiras 29075-910, Vitória (Brazil), (hereinafter "ARGUMENTUM"), according to the following terms and conditions:
1. I am aware of the terms of "Care Ethics Research Guide" described in the Policies section.
2. AUTHOR warrants to be the writer and copyright holder of the WORK submitted.
3. AUTHOR declares that the WORK does not infringe the rights of third-parties; that the distribution of images (if existent) was authorized; and that AUTHOR assumes total moral and property responsibility for their content.
4. AUTHOR agrees to transfer all the copyrights concerning the WORK to ARGUMENTUM, especially the rights to edit, publish, translate into another language, and reproduce it through any process or technique. ARGUMENTUM becomes the exclusive owner of the rights regarding the WORK, and any total or partial reproduction, in any other medium, printed or electronic, is strictly forbidden without prior written consent by ARGUMENTUM.
5. The copyright transfer is unpaid and, therefore, there will be no monetary compensation whatsoever by ARGUMENTUM in order to use the TEXT.
